Director of the Ghana Institute of Clinical Genetics, Dr. Ammah Benneh-Akwasi Kuma, has urged a collective national effort to tackle sickle cell disease, stressing that the responsibility lies with clinicians, researchers, policymakers, patients, and their families.
He made the call at a public lecture on Friday, August 29, to mark the 50th anniversary of the institute, which was founded with what he described as a “simple, profound mission to provide hope” to individuals and families affected by sickle cell disease.
Speaking on the theme, “Translating Research into Care: 50 Years of Sickle Cell Excellence,” Dr. Kuma highlighted the institute’s transformation into a center for clinical care, research, training, and advocacy. He emphasized the importance of ensuring that scientific findings extend beyond academic publications to deliver tangible benefits for patients.
“Its true value lies in improving the lives of patients, in making diagnosis early, treatment more effective, and support more holistic,” he said.
Sickle cell disease remains a major public health challenge in Ghana, with the Ghana Health Service estimating that 2% of newborns—around 15,000 babies annually—are born with the condition. About 20% of the population carries the sickle cell trait, placing Ghana among the countries with the highest prevalence globally.
Despite progress made in research and clinical care, the disease continues to account for a significant number of deaths, particularly among children under five. Limited public awareness also contributes to late diagnosis and inadequate support for affected families.
The institute’s 50th anniversary, Dr. Kuma noted, is not only a celebration of achievements but also a call to action. “Together, we can build a future where every child born with sickle cell disease receives the best possible care, and where no life is limited by their condition,” he added.
Source:Myjoyonline
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